Saturday, 11 October 2008

Politicians

Having recovered from the brown envelope from hell and the next door neighbour trying to run me over I thought its about time I did something on my blog.

The DWP letter said I will not be assessed for another 5 years [allegedly] I am still afraid. I worry about what going to happen next. I just try to go from one day to the other and see what happens next.

Just lately I have been doing quite a bit of writing. I am helping a lecturer in social work at a university who contacted me, all voluntary of course. I have been writing about my experience of having a brain injury, the correct description is actually I have very severe cranio-cerebral injury with clear evidence of damage to the frontal and temporal regions of my brain.

I am writing what it is like waking up after being in a coma, how I felt and how I feel now, peoples attitudes to a hidden disability like when I go out and about and the "Does he take sugar?" effect when you try to conduct your daily business, you know like how difficult it can be when you try to do something simple like order a couple of meals in a pub, you know when your brain knows what you want to say but you can't get it all out how you want and the person taking the order thinks you are a bit of a simpleton, then there are people tutting behind you because you are a bit slow and then trying to deal with all the multiple noises around as well, it can be very difficult.

Would it have made a difference to my recovery if I could of gone to a rehab centre sooner, rather than have to wait five years, the inadequacies of case management that charge £35-£40 an hour and then later withdraw there support because they are not making a profit from you and how when you went to the appointment they kept looking at the clock to make sure you stayed the full hour, how you can't get to see a social worker face to face now like I used to who helped me, going on schemes setup by the jobcentre that don't help, the brown envelopes from hell, medicals, ideally it is to help the students understand what it is really like for someone being in this position.

I have a date for next year when it is to be presented which at the way things are going it will soon be here. I am looking forward to it but it sounds daunting so I am going to build myself up to it. When I contact the lecturer and show what I have written I keep getting more ideas so I have to write them in. I have also dug up a lot of old paperwork and I keep finding things that I now want to write in as well.

Just lately the government and the opposition are both been ranting on about getting the scroungers, no I mean the disabled/sick people and unemployed back into work, but with the banking crisis and possible recession jobs are scarce let alone jobs for disabled people as well. James Purnell could not have picked a worse time to bring in the ESA. Where are all the jobs for disabled going to come from and who's going to pay for all this support?

They are also going on about giving disabled people all this support, what support?, in my experience so far the support stopped as soon as they got me the voluntary work placement. Where will the support end? Will it end as soon as they have got you into a job and off the ESA? Will they provide support for you once you in your job?.

The conservatives have been going on about including the 3 strikes and you are out for people on IB as well as the unemployed if you refuse a reasonable job offer. I have applied for jobs but I haven't had 3 reasonable job offers yet. Its a miracle even to got a reply to say that you haven't even get an interview. Getting a job offer would be a miracle in itself.

I have read a letter from 1994 from an employment & rehabilitation consultant to my solicitor which said because of the level of my injury I would not have been even considered for sheltered employment [places like Remploy, a Remploy manager has to run his factory at a cost effective basis, therefore when a vacancy does arise the Remploy manager is likely to chose the most profiecent worker and not the slowest] and that there would have been many more suitable candidates. Whether this has changed now I do not know.

It was considered that I had no current earnings prospects and would not be placeable in the open labour market.

Also in the same letter it said relating to the DEA and disability services of the DWP that it was now common practice for the disability services to take no action whilst a person is in continuing receipt of Invalidity Benefit [which is now IB].

If this was happening in 1994 and that I was just considered a lost cause then what if it this applies to all the other people that were on IB then it is no wonder there is 2.6 million people on IB. It seems that what the government and future governments are trying to do now is shut the stable door after the horse has bolted. They are not going to find it so easy as they make out.

When I was talking to the lecturer I said was is it just me but when I see disabled people at work they are doing the things I have mentioned before in my blog like the sweeping litter in shopping centres or push trolleys in DIY store and she agreed with me. It is not just me who thinks that.

People also fail to realise that disabled people actually want to make a future for themselves as well and have prospects and will not just take any job. There are things to consider like having enough money to pay the bills, have enough food to eat. have enough money to survive on from day to day. We are all allowed our own dreams for what sort of future we want and not just do what the ministers think we should do.

2 comments:

Peter Durward Harris said...

I'm sorry but not surprised to hear of your continuing problems. I'm not clear from your post whether you are writing a whole book about your experiences but if you are, keep me informed. I'd be very interested in reading such a book. If you wish, I might be able to help you in various ways.

The politicians, as usual, are absolutely clueless. I can understand why, because anybody who has always led a reasonably comfortable life can't understand what life on benefits is really like, and that includes those politicians who spend a week on benefits to "see what it's like" before going back to their comfortable lives. When I was young, I was clueless on these matters too. That said, politicians are supposed to listen to their constituents - all of them, not just those who are leading comfortable lives.

Robert said...

Well they are now clueless actually because the disabled wanted to have laws laws which gave us rights, the rights to be treated the same, when this happens we want laws which treat us different. The DDA came into power the DED came into power, and the government said OK well if others have to work so why not the disabled. I'm severely disabled with a spinal cord injury and a brain injury and other injuries and I'd love to work at something except handing out baskets at Asda. sadly all i get offered is handing out baskets at Asda.

But I've been asked so many times to help people out, I've done a few TV interview and have been on panels of people talking about disability, I've been on radio talking about Remploy.

But the fact is we have to many people on benefits who should not be on benefits, for example last year a person argued that he broke his leg ten years ago and it had not healed, his GP said yes it has his consultant said he had carried out five MRI scan and his leg was perfect yet he said nope until he was found playing football. a chap who had lost his little finger and was claiming DLA at both high rate for mobility and care, for the loss of his little finger.

then a person who was suffering depressive illness because each year she came back from her holiday home in Spain she became depressed, then you had the man who lost his foot and stated that was the end of his life, the bloke who lost his leg from below his knee cannot work anymore because he has one legs which is totally bloody rubbish. people who have serious disability which will kill them or cause serious problem for them working fine I've no problem.

I now help out at a charity and I see people who ask me what they can claim, I ask what is wrong with them and they open a book borrowed to tell me they have an African sickle cell, I say your not African yes but I sat down next to one, or another who said to me that his life was going because he was getting older by the day, and if he did not get benefits he would spend his life working, he felt he was ill.

You will not believe what I've seen in my time , the lady who said she was so ill that she would die if she had to return to work, you ask whats wrong, my dog died, and you say to them well it's sad but you will get over it, and she said well it's been twenty five years.

So to me I agree something has to be done, on the other hand we must protect the real disabled and the sick.