Saturday 11 October 2008

Politicians

Having recovered from the brown envelope from hell and the next door neighbour trying to run me over I thought its about time I did something on my blog.

The DWP letter said I will not be assessed for another 5 years [allegedly] I am still afraid. I worry about what going to happen next. I just try to go from one day to the other and see what happens next.

Just lately I have been doing quite a bit of writing. I am helping a lecturer in social work at a university who contacted me, all voluntary of course. I have been writing about my experience of having a brain injury, the correct description is actually I have very severe cranio-cerebral injury with clear evidence of damage to the frontal and temporal regions of my brain.

I am writing what it is like waking up after being in a coma, how I felt and how I feel now, peoples attitudes to a hidden disability like when I go out and about and the "Does he take sugar?" effect when you try to conduct your daily business, you know like how difficult it can be when you try to do something simple like order a couple of meals in a pub, you know when your brain knows what you want to say but you can't get it all out how you want and the person taking the order thinks you are a bit of a simpleton, then there are people tutting behind you because you are a bit slow and then trying to deal with all the multiple noises around as well, it can be very difficult.

Would it have made a difference to my recovery if I could of gone to a rehab centre sooner, rather than have to wait five years, the inadequacies of case management that charge £35-£40 an hour and then later withdraw there support because they are not making a profit from you and how when you went to the appointment they kept looking at the clock to make sure you stayed the full hour, how you can't get to see a social worker face to face now like I used to who helped me, going on schemes setup by the jobcentre that don't help, the brown envelopes from hell, medicals, ideally it is to help the students understand what it is really like for someone being in this position.

I have a date for next year when it is to be presented which at the way things are going it will soon be here. I am looking forward to it but it sounds daunting so I am going to build myself up to it. When I contact the lecturer and show what I have written I keep getting more ideas so I have to write them in. I have also dug up a lot of old paperwork and I keep finding things that I now want to write in as well.

Just lately the government and the opposition are both been ranting on about getting the scroungers, no I mean the disabled/sick people and unemployed back into work, but with the banking crisis and possible recession jobs are scarce let alone jobs for disabled people as well. James Purnell could not have picked a worse time to bring in the ESA. Where are all the jobs for disabled going to come from and who's going to pay for all this support?

They are also going on about giving disabled people all this support, what support?, in my experience so far the support stopped as soon as they got me the voluntary work placement. Where will the support end? Will it end as soon as they have got you into a job and off the ESA? Will they provide support for you once you in your job?.

The conservatives have been going on about including the 3 strikes and you are out for people on IB as well as the unemployed if you refuse a reasonable job offer. I have applied for jobs but I haven't had 3 reasonable job offers yet. Its a miracle even to got a reply to say that you haven't even get an interview. Getting a job offer would be a miracle in itself.

I have read a letter from 1994 from an employment & rehabilitation consultant to my solicitor which said because of the level of my injury I would not have been even considered for sheltered employment [places like Remploy, a Remploy manager has to run his factory at a cost effective basis, therefore when a vacancy does arise the Remploy manager is likely to chose the most profiecent worker and not the slowest] and that there would have been many more suitable candidates. Whether this has changed now I do not know.

It was considered that I had no current earnings prospects and would not be placeable in the open labour market.

Also in the same letter it said relating to the DEA and disability services of the DWP that it was now common practice for the disability services to take no action whilst a person is in continuing receipt of Invalidity Benefit [which is now IB].

If this was happening in 1994 and that I was just considered a lost cause then what if it this applies to all the other people that were on IB then it is no wonder there is 2.6 million people on IB. It seems that what the government and future governments are trying to do now is shut the stable door after the horse has bolted. They are not going to find it so easy as they make out.

When I was talking to the lecturer I said was is it just me but when I see disabled people at work they are doing the things I have mentioned before in my blog like the sweeping litter in shopping centres or push trolleys in DIY store and she agreed with me. It is not just me who thinks that.

People also fail to realise that disabled people actually want to make a future for themselves as well and have prospects and will not just take any job. There are things to consider like having enough money to pay the bills, have enough food to eat. have enough money to survive on from day to day. We are all allowed our own dreams for what sort of future we want and not just do what the ministers think we should do.